View from my backyard

Musings of an IT geek/suspense writer


1 Comment

Two Months

cemetery2Two months ago friends and family gathered to say goodbye. Choking back tears, they expressed their sympathies, offered their support.

Two months ago.

Time passed and coworkers moved onto the next happiness and sadness. They stopped asking you how you are with expressions filled with sorrow. They forgot you lost the person who made you whole.

I didn’t.

I know your struggle, I know your pain, but you don’t realize I know.

You go home every night to your boys, fulfilling role of father and mother. Consoling and supporting, showing strength gained through years of surgeries, chemotherapy and prayer.

You survived the worst, the moment you dreaded for years. She’s gone, leaving nothing behind except pictures, her personal items, and the memory of the warmth of her skin against yours. Sometimes you can’t bear the pain, and other times you’re relieved you no longer carry the burden of a sick wife—which brings with it another layer of guilt.

Some nights you dream of life with her before cancer intervened. In the moments between sleep and wakefulness, the images of your happy, healthy wife fade and the realization she’s dead crashes through your thoughts, shattering your heart all over again.

I watch you each day at your desk as you focus on the mundane activities that distract you from the pain and keep you sane. I smile and ask how you are, knowing you’ll lie and say you’re fine.

I can’t find a way to tell you how I ache for you. How do I say that I know the helplessness you felt because you couldn’t fix it? How do I tell you I know the devastating diagnosis she overcame four years ago during my battle with the disease?

How do I confess that I’m sorry I lived and she died?

Tomorrow morning you will wake and battle back the demons of sorrow once again. At work I’ll smile and ask you how you are, and you’ll smile back and lie.

And I’ll know.


Leave a comment

The blackbird sings of spring

apple_treeBluejays whistle, starlings cackle and cardinals call for mates. But this morning, I hear a new voice, the lilt of a red-winged blackbird. It cuts through the cacophony like an aria, reminding me of hot summer days and winds rustling through tasseled cornfields.

Snow still blankets much of the yard, but patches of dead grass lie exposed. Soon the gray-whites and faded browns will expire beneath warm spring winds, unable to fend off nature’s voracity to live again. Bright green shoots will emerge from black soil and from tips of brown twigs, to envelop the world in new life.

The smell of new-mown grass will waft through the air, mixed with the fragrance of lilacs. People will shed their fleece skins. They’ll emerge from their homes to walk their dogs or to teach little ones to ride bicycles.house_3_2007

We’ll pause for a moment to take in the scent of the warm earth after the first moments of a rain shower, or to appreciate the heat of a sun that had mocked us on the most frigid winter days, bright and icy.

Battle weary from temperamental furnaces, malfunctioning snow blowers and slippery commutes, we yearn for a change in seasons. We hang up our shovels and stow our parkas, and allow ourselves the possibility of spring, to believe in the blackbird’s song.


3 Comments

Our paradise lost

cottage fireplaceIf I held out a peanut and sat motionless long enough, a chipmunk would gather its courage and start toward me. Run three steps. Stop. Eyeball me. Run three more steps. Eventually he’d make his way to my outstretched hand and pull the shell from my fingers. He’d shove the nut into his elastic cheek, his round, beady eyes watching me, untrusting, then scurry off.

Grandma encouraged us in our endeavors to win over the local horde of chipmunks who lived among the forest of oaks, birches and pines. Her shopping list always included a bag of unsalted peanuts in the shell.grandma27

Grandma and the cottage. In my world, neither could exist without the other.

My grandparents built a refuge in northern Wisconsin: varnished log walls, a fieldstone fireplace, and a chandelier crafted from an old oxen yoke.  Antique snowshoes hung over the bay window, and a driftwood branch suspended a copper light fixture over the maple table and benches my grandfather built.

We kids slept in the loft. Rain pattered against the roof or the occasional acorn dropped and rolled down the shingles.   Felt pennants covered the ceiling’s log braces, mementos from family trips taken during our parents’ youth.

My cousins, Julie and Andy, my brother, Fred, and I all share the same, exquisite memories of days gone by.cottage kitchen

Bacon sizzled and frying eggs crackled in the old Sunbeam electric frying pan perched atop the stove, a thick covering of paper toweling beneath its black, plastic legs. Grandma, Mom or Aunt Carol stood over the pan, wielding tongs or a spatula.

Outside, a single fishing boat whined by, like the sound of the mosquito that had followed me to bed the previous night. The vessel’s bow sliced through still waters, sending a series of ripples across the satin surface.

Julie and I hauled green and orange plastic placemats out to the pine picnic table in the screened porch. We coordinated them with Fiestaware bowls, cups and plates in fire orange, butter yellow and wedgewood blue. We folded napkins and tucked them beneath the forks.

We would run down to the lake for a quick stop before we ate. After stringing up the hammock and setting out the seat cushions, we’d sit on the cool flagstone lip of the seawall and search for treasures the morning sun illuminated in the shallows. Crayfish explored the sandy bottom and schools of minnows darted through the waves that lapped against the wall. Andy and Fred tried to catch fish by plopping worm-covered hooks in front of perch hiding in the shadows under the pier.cottage boathouse

After breakfast, we’d walk the old, cracking pavement road that wound through the woods, past a variety of modest summer cabins. The lane disintegrated to dirt and sand at a “no trespassing” sign that Grandma always ignored. Eventually the route reconnected to a public road that circled back to the cottage. Leaves rustled overhead, allowing bits of sunlight to sneak through the forest canopy to dance along our path.

Grandma taught us white pines bear five-needle clusters and red pines have two. She showed us “snapper” bushes loaded with plump pods that we rolled between our fingers until they burst open with summer’s energy. We’d snack on the bounty from blackberry bushes growing wild along our route.

When I was three, Grandma taught me to swim. I never feared the water—other than the slimy carcass of a submerged tree that lurked in the stretch of water between our place and the Kampines’.cottage bathing beauty

Lake Kawaguesaga never warmed. We’d tough out the initial frigid shock and then splash around until we turned blue. We’d sprawl out on lawn chairs until warm enough to jump in again. Usually one of the basset hounds ended up in the water with us, his rinse after the requisite bath to banish the odors from another roll in dug-up fish guts.

A day couldn’t pass without a boat ride. In our youthful exuberance, we crowded in the open bow. Our wet hair slapped against our faces and wind roared past our ears until Dad slowed for the no-wake zones around the bridges.cottage view of lake

Sometimes we rode the boat to Minocqua, docked at Bosacki’s and roamed the town’s main street. Back then, we loitered in two stores: candy and toys.

Dan’s Gay 90’s fudge shop offered the ordinary and the exotic in candies and ice cream flavors.  We loved the cinnamon jaw breakers, whereas Grandma preferred black licorice and lemon drops. The fudge making process fascinated me—from its copper kettles to the long metal bars that kept the cooling fudge from running off the marble counters.

Money burning holes in our pockets, we’d bypass the front half of the dime store and roam the back aisles where shelves stacked to the ceiling displayed every toy imaginable. Usually I spent my time and dollars on accessories for my stable of Barbie dolls.

On occasion Julie and I joined the guys on fishing expeditions, but usually we stayed at the cottage. We’d watch our fathers and brothers load the fishing boat with tackle boxes and rods, cartons of worms, a minnow bucket and an anchor. We’d wave goodbye and soak up the sun, enjoying lakeside time with Grandpa and Grandma.

When the anglers caught enough bluegills, crappie and perch for a meal, Grandma pulled out the Sunbeam again. Otherwise Grandpa, Uncle Ron or Dad fired up the Weber grill for the meat du jour.cottage from lake

Serenity settled over the lake at nightfall, along with darkness so solid I couldn’t see my own hand on a moonless night. Loon calls echoed over the water, reminding me of a melancholy I would not understand until much older. We filled the evenings with games of Liverpool Rummy and popping corn in the fireplace.

Life. Laughter. Love.

Grandma sold the cottage a few years before she died. The new owners “remodeled” our beloved retreat and replaced its charm with utility, reminding me of slapping a paint-by-numbers picture over a Monet canvas.

We no longer drive by. The sight hurts too much.

The cottage and Grandma are melded into our DNA. We carry with us memories so vivid and extraordinary that we ache from their beauty. In the rare times we’re all together, the stories surface, like bubbles in water.  They pour forth and the laughter reminds us once again of the joys we shared as a family.

Perfect moments in our imperfect lives.


2 Comments

Cancer: the fickle fiend

ribbon2Gray on gray, the tumor filled the ultrasound screen. The interloper had enmeshed itself in my breast, slithering between my cells to expand its grasp on my body, on my life.

“A cyst has defined edges,” the radiologist said.

Not like this.

Cancer. Me. Cancer.

I donned the shroud of patient and, after weeks of worry, biopsies and MRIs, underwent a lumpectomy. My medical oncologist advised chemotherapy, but lacked evidence of its benefit for my situation. I reluctantly agreed, but stopped after the first infusion, concerned about permanent neuropathy. I finished treatment with seven weeks of radiation, absorbing the daily dose over lunchtime. Eventually my hair grew back and life went on.

I’m dubbed a cancer survivor.

Survivor? Hell, I don’t know the meaning.

My friend, Kathy, exists in a world filled with PET scans and CA125 tests. Multiple rounds of chemotherapy have eaten away at her organs—collateral damage in the quest to kill the relentless predator that invades her body. Fragile kidneys, neuropathy-torched feet and constant exhaustion task her every waking moment.

I feel like a Roman at the Colosseum as I watch Kathy in battle. A gladiator in the arena, with doctors and nurses offering her weapons, my friend fights alone. She advances, slashing at the evil, pushing it into retreat for a few months, but the disease finds a vulnerable spot and attacks again. I pray and offer support, the limitations of my role as a spectator.

For me, cancer has been a hiccup in my life—a pit stop in which I needed to “get fixed” before I roared back into the race.  I grouse about lousy drivers, too much work and crappy weather. Cancer hasn’t forced me to evaluate my life, to change it. I chew up every day and expect there to be a fresh one tomorrow. I make plans without wondering if I’ll live long enough to see them through.

Days like today, when Kathy tells me another growth requires surgery or chemo, I realize how lucky I am, and understand not the meaning of survivor, but of survivor’s guilt.


Leave a comment

January 7: I’m done!

From late November, I can't take a new picture until my wrist is out of the cast.

The "artwork" from my tumor-area-only treatments

I finished my radiation treatments the week after Thanksgiving, something like December 2. I had a bit of a sunburn, and I got a little tired. It would hit me about three in the afternoon; suddenly I wanted to nap. In the evenings I fell asleep on the sofa around 8 or 9 PM.

For the most part, I forgot about the treatments. My reminder went off at 11:30 and at 11:45 I was on my way, coat on, rushing over to the hospital. By 11:55 I’d be out of my clothes and into the gown. They called me in, I got zapped a few times, grabbed lunch on the return trip and usually made it back to my desk by 12:30, prepping for my next meeting.

The last eight treatments zeroed in on the location where the tumor had been. By then I was a bit red and glad I was almost done. For these sessions, the Linnac (a.k.a. espresso-machine-on-steroids) was fitted with a plate shaped like the tumor area. The radiation tech explained that the machine sent a different type of particle for these treatments and the little buggers liked to go off in all directions. The plate forced them to “straighten up and fly right.”

My “all-inclusive package” offered more body art — albeit temporary this time. To make sure they pointed the machine at the correct spot, the techs created a template from which they drew the shape of my tumor area on my chest each day. I had to chuckle the first time I saw the plastic guide. To center it correctly, one of the techs drew in the scar from my lumpectomy. His rendition of my scar brought to mind visions of Frankenstein.

The day after my last radiation treatment, I started tamoxifen. The first couple of weeks I was a little nervous because the drug can, in rare cases, cause blood clots to form. Every little ache or pain in my legs gave me pause and a voice in my head screamed “There she blows!” But so far so good.

The “features” of the tamoxifen that impact me most are increased night sweats and an occasional hot flash. Normally I spend my winters shivering under electric blankets, extra socks and flannel everything. It’s a bit jarring to wake up with hot feet, a soggy scalp and a back that feels like a furnace — too bad I can’t control these new-found powers for the good of mankind. Instead, five minutes later I’m clammy and cold.

My rheumatoid arthritis damaged my right wrist, so I finally underwent joint replacement surgery in late December. For the last three weeks my right arm has been encased in a cast-like brace. Getting through the day has been interesting, to say the least. Bedtime is a real adventure — wearing flannel pajamas and trying to turn between flannel sheets with one arm in a cast.

I mention this because, for the first time, I’m thankful I don’t have hair! I can’t imagine the struggle of washing, drying and styling a full head of hair with my right hand out of commission — Don King and Phyllis Diller would be envious. For the next few weeks I’m content with my Susan-Powter-gone-pewter look.

I didn’t have the meltdown the counselors warned me about, but cancer changed me. As I wrote in my Christmas letter, I’ve had to confront my own mortality. I take notice when I hear of a cancer death — especially when the situation is like Elizabeth Edwards, a woman who was diagnosed with stage II in 2002 and died from it in 2010. But life goes on for the survivors and we move forward.

In February I have my six-month follow-ups — a mammogram and an MRI. I’m sure hoping everything looks good and I won’t have to undergo any ultrasounds or biopsies.

From my lips to God’s ear.


Leave a comment

November 9: 18 down, 15 to go!

Still pretty sparse

Pink in some areas

Friday I went over the mid-mark, more than half done! My skin is getting a little pink in the armpit area, but otherwise it looks good; no fatigue. I dash to the hospital over the lunch hour, get zapped and return to work. I have to say this is pretty convenient.

I run over and begin undressing when I get into the elevator – outerwear, phone, etc. come off. I scurry into the changing room where I whip off my wig, sweater and bra and throw on a gown, then sit in the waiting area until I’m called. The techs then escort me into the room where I lay on a platform and they align me with the light beam from the ceiling and two from the walls. Each day they mark near the tattoos, so I’ve learned to wear only black bras to avoid purple blotches on the insides. For efficiency’s sake, I’ve also stopped wearing necklaces and large earrings.

The machine is intriguing. The spot that shoots out the radiation has the capability of changing shape — sort of like a two dimensional version of a pin sculpture. Sometimes during radiation they place a metal sheet over the window on the machine. From what I understand, this enables them to “curve the beam.”

It may seem strange to say, but my daily radiation treatments bring a little humanity into my routine. For a few moments I’m in the presence of individuals who care for the sick. Their entire day revolves around patients – touching, assuring, healing. Afterward I return to the world of computers, applications and deadlines.


Leave a comment

October 16: How am I?

The grays that hung on are growing!

Work is really picking up, the days are full of meetings so they’re flying by. I don’t think much about the cancer — probably the most time spent on it is during my walk over to the hospital, and I think my biggest concern is that I’m not upset that I was diagnosed with it. Somehow I’ve conveniently compartmentalized this fact and feel no emotion, no angst about it.  I worry that I’m in some sort of denial. But by the time I get to the hospital I’m already thinking about something else, and when my treatment is finished, I’m focused back on what needs to be done at the office.

I’m so over the wig — I want my hair back! Now that the grays are growing, I search each night for some sign that the other hairs are starting to return. I carefully run my fingers over the terrain of the bald areas, but so far my heart hasn’t fluttered from the delightful discovery of new stubble. My head still seems to be a vast desert of empty follicles, void of any life. At night when I wash my face I inspect my scalp in the mirror, scrutinizing the landscape in the hopes of seeing a 5 o’clock shadow. No luck, but I’m thankful I didn’t lose my eyelashes or eyebrows.

The skin on my scalp is soft, sort of like a newborn’s butt. Evidently my hair has protected this patch of skin from the elements.

I wasn’t kidding when I said by the time I’m in the hospital I’m thinking about something else. When I walked through the halls yesterday, I observed all of the bald heads of the men around me. Did you ever notice that some of them are as shiny as a bowling ball, while others are more of a “matte finish?” Mine doesn’t shine, maybe that has to do with skin type, or the amount of time it has been exposed. I don’t know, I’m just thankful mine doesn’t reflect light!

Otherwise, there’s no change it me, I feel the same as I did last June before the diagnosis, completely normal – except for that pesky draft against my scalp!


Leave a comment

Oct 15: Day two of treatment – still not glowing

 

Part of the outline of the area that is radiated

 

My routine is to leave work at 11:45 so I can be changed and ready for treatment by noon. On Friday we were right on time. During one of the treatments they need to validate the amount of radiation hitting my body, and they needed to mark an outline on my chest of the area being exposed to radiation and take a picture of it. I had the time to do it on Friday.

For the radiation check they taped a piece of plastic to my chest — I assumed it was a special plastic, not a recycled chunk of a Pick’ N Save bag.  😉 Once the “oversized espresso maker” rotated down and I was lined up — in the exact same position again – one of the techs drew an outline on my chest with a marker. The machine buzzed and we did the routine again, this time the machine on the other side of me. Then they took the picture and I was done.

As I changed, I was surprised at the expanse of skin that gets radiated– they don’t play around. The area starts just under my breast and goes halfway up my chest. Horizontally it starts at my sternum and goes around to my back.

I haven’t experienced any sunburn and no fatigue at this point – which I wouldn’t expect after just two treatments anyway.

Two down, 31 to go!


Leave a comment

Oct. 14: Here we go!

On Thursday I finally had my first radiation treatment. Once again, like an ant returning to the colony, I scurried over to the hospital and all the way through it to get to the elevator that took me down into the bowels of the building.

I immediately changed into a gown and robe and sat in the treatment waiting area. Impressed by the speed the day before, I bravely set up a meeting for 12:45, confident I could make it back to the office by then.

When, oh, when will I learn? I should know by now that if I don’t give myself enough time, we will run late — Murphy has written that law just for me. I started to get nervous so I went back into the changing area and grabbed my phone to find out the time: 12:07. Blood pressure went up 10 points. A minute later, blood pressure up another 10 points.

Sometimes I forget how good I have it: from the treatment room they wheeled out an older woman, hooked up to an IV, covered in a blanket. They got me in and out of there in five minutes.

The techs reminded me that I needed to meet with the nurse and I told them it had to be fast. We ran into her in the hall and she whisked me into an exam room where she speed read the instructions and handed me the lotion I was to apply to my chest twice a day. The treatments would take a little longer on Tuesdays, as that is when I meet with the radiation oncologist.

I changed at breakneck speed and headed back to work. By the time I got there, my head was sweating beneath the wig, but I made it.


Leave a comment

October 13: Radiation dress rehearsal

I meandered through the hospital and found the elevator that took me to the basement where the radiation department resides. I was instructed I didn’t need to stop at the front desk, I could go directly to the waiting area for treatments. The hospital has multiple machines, but it seems you go to the same one at the same time every day, Monday through Friday.

I sat down and opened a magazine, and within a few minutes one of the techs found me and instructed me to change into a gown and sit in the area for machine one. I entered the women’s changing area and grabbed a gown and a robe. On planning day I did the same, taking off my shirt and bra, but I left on my wig. When I got into the simulator area for planning, I decided to remove my wig because I didn’t know how long it would take, and wigs don’t like body heat.

On dress rehearsal day, I decided to scrap the wig, storing it in the locker with the rest of my things. I barely sat down in the waiting room before I was whisked into the treatment area. The room is large, with a machine that sort of looks like a life-sized espresso maker sitting in the middle. A platform is situated where the coffee cup would sit.

I laid on the platform and they had me position myself exactly as I did during the planning session — my arms over my head, holding the bar with my hands in the same position. There were four techs swarming around me, a couple of them pulling on the sheet beneath me to get me in the position needed. The ceiling has a large light fixture that looks like stained glass with various types of leaves. Above me was a cut-out area from which shown a red light. This light is what they lined me up to, the three tattoos aligned with the points of light, I assume. The espresso maker rotated down so the top, which looks like a crown, was situated at my side. The techs came in and out, the espresso maker making a buzzing sound when they left the room.

The crown  rotated to the other side of my body, another buzzing sound and I was done. It took about 15 minutes. Not bad.

My radiation oncologist’s nurse was to meet with me afterword to talk about treating the area that was being radiated. She was running late so we would do it the next day.

I threw my clothes on and headed back to the office.